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Latest
Psoriasis Association News
Click here for psoriasis
support group dates and venues
Please
note that the Psoriasis Association has moved offices. Our new details
can be found on the contact
page
The Great British Duck Race 2008.
Sponsor a duck in the Great British
Duck Race (31st August 2008 - Hampton Court Bridge) on behalf of the Psoriasis
Association, and you could win £10 000! For more information please
visit the Great British
Duck Race website or
to sponsor a duck please follow this link
Thank-you and good luck!
Visit our Facebook
Page and Facebook
Group!
Doctors!
Research Grants
Applications are now being welcomed
for Research Grants, for more information please see the research
pages
Essential acute dermatology for General Physicians and GP's - the Royal
Society of Medicine, Tuesday 23rd September
The aim of this meeting is to discuss the
diagnosis and management of acute dermatological problems at the primary-secondary
care interface. The emphasis will be on conditions that may initially
present from general practice to acute medical receiving units, and the
main focus will be the requirement for referral, diagnosis and differential
diagnosis, and the early management and investigation. For further information
and the programme for the day, please click here,
or to book, please visit
http://www.rsm.ac.uk/academ/cuderm.php
Route 66
Congratulations to Dr Kate Condon who
has completed her mammouth run of Route 66 in America on behalf of the
Psoriasis Association. To read Kate's blog, please visit:-
www.psoriasis-association.org.uk/route66.html
It is not too late to sponsor Kate! If you would like to sponsor Kate,
please contact the office
Thank-you
to everyone who registered and took part in the Walks for Skin and the
British 10K run - your support is vital to the Association.
PsoKids CD-ROM
Lots of things can go wrong with the skin
that we can't help happening and psoriasis is just one of them. An important
thing is to remember that you're not alone. There are lots of people all
over the world who have psoriasis and deal with it every single day! PsoKids
is an interactive, fun packed CD-ROM designed mainly for children (although
there is a bit on their for parents/carers too!). To
order your free copy,
please
contact
us
Treatment / Company / Product
Information
NICE issue Guidelines regarding the use of Adalimumab (Humira) for severe
psoriasis
The
National Institute for Health and Clinical Excellence (NICE) have issued
their guidelines regarding the use of Adalimumab
to treat psoriasis. NICE have recommended Adalimumab be prescribed when
"the condition is severe" - defined by a PASI
score greater than 10 and a DLQI score greater than 10, and "their
condition has not improved with other treatments such as ciclosporin,
methotrexate and PUVA (psoralen and long-wave ultraviolet radiation),
or they have had side effects with these in the past or there is a medical
reason why they should not be given these treatments."
To read the guidelines, please follow the
link to the NICE
website. For further information on Adalimumab, please click here
NICE issue Guidelines regarding the use of Infliximab (Remicade) for severe
psoriasis
The National Institute for Health and Clinical
Excellence (NICE) have issued their guidelines regarding the use of Infliximab
to treat psoriasis. NICE have recommended Infliximab be prescribed when
"the disease is very severe as defined by a total Psoriasis Area
Severity Index (PASI) of 20 or more and a Dermatology Life Quality Index
(DLQI) of more than 18" and
"the psoriasis has failed to respond to standard systemic therapies
such as ciclosporin, methotrexate or PUVA, or the person is intolerant
to or has a contraindication to these treatments". To read the guidelines,
please follow the link to the NICE
website. For further
information on Infliximab, please click here
Adalimumab (Humira) receives its license for use to treat moderate to
severe psoriasis
Adalimumab is the first fully human anti-TNF
(tumour necrosis factor) monoclonal antibody approved for the treatment
of plaque psoriasis. “The licensing of adalimumab offers a valuable
new treatment option for people living with moderate-to-severe psoriasis,
a very difficult and often isolating condition,” said Gladys Edwards
from the Psoriasis Association. ”We welcome the approval of new
therapies such as adalimumab that can significantly improve the quality
of life of patients and expand the options available to those who are
most in need of treatment.”
Adalimumab is a subcutaneous injection, meaning it can be
self-administered at home after suitable training.
For further information regarding Adalimumab
please click here
MHRA find steroids in an Aloe Vera cream marketed to treat eczema and
psoriasis
The Medicines and Healthcare products
Regulatory Agency (MHRA) has found steroids in an intensive body lotion
with Aloe Vera called OSAS, which claimed to contain natural ingredients.
The lotion which is an unlicensed product illegally claimed to treat eczema
and psoriasis and has been found to be sold in a variety of Asian and
African beauty shops in London and the West Midlands and over the Internet.
OSAS was found to contain betamethasone
(a potent corticosteroid) and clotrimazole (an anti-fungal treatment).
For further information, please visit the
MHRA
website
Etrivex Shampoo
Galderma (UK) has recently launched a new
product for the treatment of moderate scalp psoriasis in adults. Etrivex
is a short contact corticosteroid shampoo that is only available on prescription.
It is stocked by all wholesalers and most pharmacies. It is important
to follow the instructions carefully as the method of application is different
to that of conventional treatments - approximately half a tablespoon (7.5ml)
should be applied directly to your dry scalp and massaged into the lesions.
Etrivex should be left in place for 15 minutes. Then, add water and lather,
avoiding contact with the eyes and other delicate areas - rinse thoroughly,
condition and style as normal.
Availability of Exorex Lotion
Forest Laboratories have informed the Psoriasis
Association that they are currently experiencing difficulties with the
manufacture of Exorex Lotion. They assure us they are currently doing
everything possible to ensure that the availability of Exorex Lotion is
returned to normal as soon as possible. Forest Laboratories anticipate
that the availability of Exorex Lotion will be back to normal in September
2008.
Availability of Psorin Ointment and Scalp Gel
LPC Pharmaceuticals have informed the Psoriasis
Association that Psorin Ointment and Psorin Scalp Gel are currently out
of stock. It is expected that Psorin scalp gel will be available from
August 2008.
Availability of Calcipotriol Ointment
As described below, Leo Pharma has
discontinued the supply of Dovonex ointment. However, we are pleased to
announce that Sandoz Ltd have been granted their UK Marketing
Authorisation for generic Calcipotriol Ointment 50 micrograms/g in a 120g
tube (the same composition as Dovonex Ointment). In order for you to receive
the correct dispense from your pharmacist, your doctor must write your
prescription for "Calcipotriol Ointment" -
the pharmacist will not be able to dispense this from a prescription for
"Dovonex Ointment"
If you currently have Dovonex ointment on your repeat prescription, this
will need to be re-written or amended in order for you to continue to
receive the medication without disruption.
Discontinuation of Dovonex Ointment
LEO pharma UK have informed us that
they are discontinuing the supply of the ointment formulation
of Dovonex on 16th April 2007. In view of current and future availability
of alternative products for the topical treatment of plaque psoriasis,
the clinical usefulness and commercial viability of this product is judged
to be too limited to justify its continued supply by LEO Pharma. Alternative
formulations such as Dovonex Cream and Scalp
Solution will continue to be available. The discontinuation has
not resulted from any safety or quality concerns.
Patient Information Leaflets (PIL's)
Do you discard the packaging your medications
come in only to find a couple of weeks later that you could do with knowing
a little more about your treatment? Well help is at hand! ALL
PIL's can now be accessed online at
http://emc.medicines.org.uk/
Psoriasis
Support Group
| Belfast
Support Group |
Second
Monday of every month in the Board Room, City Hospital, Belfast |
| Plymouth
Psoriasis and Eczema Support Group |
Last
Wednesday of every month, Southway Community Centre, Plymouth |
| Salisbury
Psoriasis Support Group |
Wednesday
10th September 2008 - Informal meeting, with speaker, "The
psoriasis journey". 6.00pm, Salisbury District Hospital.
Wednesday 19th November 2008 - Social gathering, venue TBC |
To visit
our news archive click here.
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